My scoliosis...

41% Normal
14 Comments

A few months ago, I was diagnosed with scoliosis. It took my doctor and family by surprise. I was somewhat surprised, though I shouldn't have been. I had noticed months prior while losing weight that my hips were very off, but stupid me didn't think anything of it! After the initial diagnoses, I begun to hate the way I looked even more. I was greatly disturbed by my uneven waist and it got to the point where I felt like smashing all of the mirrors in the house. I didn't want to look at myself...

Sometime In winter of last year, I went to see a spine specialist. He looked at my X-ray and felt my back. He said the possibility of my spine curving was very low and wouldn't do anything. There are two issues I have with this. 1. He didn't tell me what my current degrees were and 2. A few weeks after going to see him, my back started to feel strange. It had periods of numbness and pain. It visualised as a hot White oval near the left shoulder blade (I have Synesthesia btw).

The symptoms didn't let up and now in march they've worsened. The right side of my hip used to go in like a jagged edge and the left like a gentle slope. Now the right looks higher and goes in allot more. The hip on that side greatly protrudes outward. The left is not a gentle slope. It looks like a wave and the hip looks bumpy. My back causes me allot of pain. Sometimes, I can't even stand, sleep or sit properly! Pain shoots up my spine and branches to the rest of my back. I can tell that it has moved. I can feel more kinks in my spine. I've developed a fear. I'm scared that my spine will somehow pierce my heart! Over the weekend, I couldn't properly breath up. It caused pain in my ribs and upper back and numbness in my left arm.

I feel like my family isn't taking this seriously. If I tell them that I'm in pain, they'll say that it's a excuse. My mother said she would "pray it away", but it made things much worse. I don't know what to do! Please help!

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41% Normal
Based on 32 votes (13 yes)
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Comments ( 14 )
  • Who_Fan4Life
    12 years ago

    Tell the doctor to Scolios-THIS!

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  • ilovearts
    12 years ago

    I know how you feel. I have scoliosis too and even need surgery soon.
    If you have these kinds of symptoms and are worried then you really should see a doctor again. Scoliosis doesn't typically come with that kind of pain. It can sometimes mean that some underlying problem is causing the spine to curve, but that is not always the case. It's important to catch any problem as early as possible so tell your parents that.
    And scoliosis can progress differently in different people. Even if your doctor said that it will not get worse, that doesn't mean that he is definitely right. So if you feel that it is progressing than just to be safe try visiting the doctor again, or maybe a new one to get a new opinion.
    And I know that your body can sometimes scare you with things like these. At the beginning I hated mirrors too. But it's important to not let these things take control, cause it's just not pleasant of good for you to hate a part of your body like that.

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    • Avant-Garde
      12 years ago

      Thank you:)

      I'm being tested for other things, that probably caused my spine to curve. If positive or not, I don't know if it would cause that amount of pain. I don't know when I see any of my doctors again, but I'll definitely try to tell them about what I've been experiencing. I tried reasoning with my family, but they've refused. They have said that if I need an operation that it's basically pointless and that I'll have to pay for it. Which would be impossible. I don't know what I'll end up having to do. The body can be a scary thing especially if you're the one whose having to deal with those scary things.

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  • beagle101tb
    12 years ago

    I have scoliosis but I've never experienced pains such as those. I recently had a spinal fusion to fix my curve; maybe you should ask your doctor about it. It helped a lot, but I'm not going to lie to you and say I wasn't in pain. It hurt a lot but was way worth it.
    Before, I felt like my ribs were pressing into my hips (I had a 40-something degree curve).
    You could also try seeing another doctor about it?
    I hope I helped at least a little

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    • Avant-Garde
      12 years ago

      Thank you. I probably won't be sent to another doctor and right now surgery of any sort is out of the question. I was reading that pain is usually from the spine curving and the nerves breaking away from it. I suppose that would explain my numbness, but it doesn't really give any answers for the rest.

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  • myownopinions
    12 years ago

    Sometimes yelling and crying to your parents that they're not listening to you actually works. If not, then you can try and guilt-trip them into actually helping you.

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    • Avant-Garde
      12 years ago

      I tried, but failed miserably.

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      • myownopinions
        12 years ago

        Then file a lawsuit against them. You probably won't win, but at least you will get their attention.

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        • Avant-Garde
          12 years ago

          I'd wouldn't even be able to get a lawyer. They wouldn't let that happen. They believe that what they say is best.

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          • myownopinions
            12 years ago

            Well there's got to be something!!! Call your doctor to prescibe you pain meds.

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  • shade_ilmaendu
    12 years ago

    Im in a similar boat actually. I have scoliosis, 7 or 12%, something like that i think? So not a severe curvature, but my back has been in constant pain for the past 4 years of my life. If you follow the lines of the muscles in my back and hips theyre all fucked up and twisted because of my spine curving. visibly its not too noticable but its uncomfortable as all fuckberries.

    Its tough though, doctors dont like to perscribe painkillers since theyre habit forming and hesitate to perform surgery because back surgery is so expensive and so dangerous, and really if a brace doesnt help/isnt an attractive option, those are the options available.

    Havent tried going to a chiropractor though, theres always the possibility that would help. And if he didnt tell you your curvature or anything I would either call the office back and demmand the results or take my business elsewhere and get a second opinion. You need a doctor whos gonna communicate whats going on with you.

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    • Avant-Garde
      12 years ago

      I hope your spine gets better. I have realized that if my spine keeps changing that I probably would have to get surgery at some point. I don't want to have get it done and I'd rather not wear a brace either. But ignoring my spine will only prolong a already worsened situation.

      Him not telling me my degrees is odd. My main doctor had said that he would tell me the curvature even if it wasn't severe. I'm baffled that he didn't and that my family wouldn't pursue it more. I don't know how I'll find out what my degrees are. If he wouldn't tell me, then I doubt he would've told my doctor. The whole thing is fucked up. I'll have to tell my doctor and see if she has them or not.

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  • j-man20
    12 years ago

    your moms sounds like a b1tch
    become an hero.

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    • Avant-Garde
      12 years ago

      Hero?

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