Inaccurately diagnosed?

Have you ever been inaccurately diagnosed for some medical condition? What for, and what did you do?

Was diagnosed by my pediatric neurologist with severe cluster migraines. Turned out to just be vertigo. (Being a sick child sucks).

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  • I have rarely been helped by a doctor. Other than broken bones, stitches or needed surgeries most ailments or conditions I've had have been solved by natural means and time, not anything a doctor directly did.

    Most of what general practitioners do is inconsequential imho, and would resolve themselves giving rest and time.

    Almost all medications I've been prescribed either did nothing or made the situation worse.

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    • you mean you didnt ask your doctor about Xkysguizqyl™®?

      the commercials durin the evenin news said itd cure all my ailments with only a small chancea explosive diarrhea or gangrene or brain infection or genital dropoff or spontaneous combustion or general psychosis or just plain droppin dead

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      • Side effects may include: runny noses, itchy butt, high cholesterol, low cholesterol, headaches, nausea, vomiting, fevers, chills, and uncontrollable night sweats. In some rare cases, death may occur. Stop taking XYZOl™️®️ If you experience any of these symptoms or your condition worsens.

        XYZOl™️®️: We don’t know what it does either 👍

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      • Well death cures all ailments that pertain to life.

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  • I once had a doctor call my naturopath a "quack" because she "obviously missed my female issues" and proceeded to recommend invasive ultrasounds to find nothing. He was the second opinion to my mysterious stomach pangs. As it turns out, my naturopath helped me discover a corn intolerance by supporting my efforts.

    In general, I have yet to be misdiagnosed but I have been given bad treatment plans so many times I never go to a doctor unless it's for something routine.

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    • So many people have corn allergies and its in everything.

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      • Allergies and intolerances are different. For me, it is just an intolerance, thankfully. With corn in my system, I can't process other foods. Although I have read reports that it is potentially reversible, if only it were easy to get everyone on the same nutrition page.

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        • My friend is actually allergic to corn and nightshades. She has hives and excema so bad. Poor thing.
          Intolerance is only if you eat it right?

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          • Correct. An intolerance is usually an inability to process. An allergic reaction is your body thinking it is poison and attacking itself.

            I also have a mild allergy to nightshades. It's hereditary, my dad and sister both get hives, I just get joint pain.

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  • ive told this here before

    i was gittin an unrelated exam from some wannabe dr house who suddenly started absolutely doggin me (and in this totally condescendin manner) to admit my intravenous drug addiction

    and im like what the fuckre yall talkin about lady but she was just totally convinced & wouldnt hear another word so we argued for a bit with her givin me this whole 'its okaaaay to admit your problems' bidness

    finally i got pissed and said thats it im done arguin and im leavin ill go to a different competent doctor if i hasta and started to leave

    i asked just what the fuck she thinks it is she sees that makes me a needle junkie which i definitely aint despite bein no mormon

    she pointed to a buncha pock scars in the crooka my elbows and said youve got trackmarks

    i said if they were trackmarks they wouldnt be randomly splotched all over my arms theyd be over veins dipshit so maybe yall should ask me if ive been doin some arc weldin over recent years

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    • I find doctors to be a necessary evil. My father was taking some blood pressure medication and the doc kept upping the dose even though it wasn't working. Eventually the dosage was too high and he had a hart attack at work.

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      • I'm assuming the medication was to lower his blood pressure? High blood pressure is one of the factors which can cause a heart attack, but I don't see how BP lowering medication could do that. I'll bet there were other factors: cholesterol, smoking, alcohol, obesity, lack of exercise, bad diet, heredity?

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        • Oh yes, he is obese, used to be an alcoholic and heavy smoker but quit both, just doesnt exercise. Needs an oxygen tank but refuses one... I could go on, but there are reasons why I have a hard time visiting him

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          • If he was a heavy smoker and needs oxygen, he probably has COPD/emphysema, depending on how long & how heavily he smoked before he quit. It's a common misconception, fostered by the Quit campaign in Australia (I don't know about other countries), that after quitting smoking your body will heal itself, which just isn't true for many people. I'm speaking from personal experience, but have also met many other people in the same situation, some of whom developed emphysema years after quitting.

            Anyway, I think you've proved my point, that in the case of your father there are other factors than blood pressure medication adversely affecting his health.

            The fact that he refuses an oxygen tank when he needs one indicates he's not looking after his health in general, and that must be very hard for you to deal with.

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            • A) he stated that he would rather be *put in the ground* than be seen with an oxygen tank. He already knows the end is near but somehow just wont die!

              B) He lives several states away from me (but I make an effort to see him once a year) and we are not close/never were.

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    • Ack! What an insulting accusation. Even if it were true it isn't her job to pass judgement. Very hard for a doctor. My kid's pediatrician was the only doctor that didn't sound judgemental when he strongly recommended I quit smoking. He congratulated my small efforts and gave me statistics on successes of quitting, not the bad ones. I miss that doctor, good doctors are so hard to find.

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  • vertigo is not a diagnosis, it is a symptom of something.

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    • What triggers vertigo for me is usually motion sickness (rollercoasters included), migraine not treated, FPS videogames, and the obvious of being on a boat

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  • I'm pretty sure, but can't say for certain, that I was mis-diagnosed earlier this year when the doc said I had bad acne. In reality it was "acne" in places I never get and it itched more too. My doc was in a hurry and didn't even see the whole thing lol. My mom, who's a nurse, thought I had a goofy rash that is usually transmitted from skin to skin contact. It's technically not an STD and can be transmitted other ways but it sounded like just what I had. Kept me up at night being itchy a lot but other than that not too bad, went away in a few weeks. A girl I was sleeping with a lot leading up to this had weird spots just like mine so I should have seen it coming, but I didn't think much of it at the time.

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  • When I was a child to the time I was a teenager I went to alot of psychiatrists and I was diagnosed with everything. Every psychiatrist I went to gave me a different diagnosis

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  • I was given antibiotics for a month, several visits, before going to a and e coughing up blood to be given 24 hours to live in severe heart failure at 23 years old. Luckily I made it for a further 11 years and had a heart transplant last year. I know all too well about the stupidity of your GP

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  • I have never had a medical issue and don't plan too.

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    • I have news for you, nobody plans to! And you will almost certainly have at least one if you live long enough.

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  • No, the diagnoses that I have are a good fit with how i've always been as a person.
    However I question if they've missed some things. For example 2 therapists have stated that I have big symptoms of depression + I have depression in my close family and it is genetic unfortunately. I also often get headaches and auras yet migraine has never even been mentioned. Doctors have told me that headaches are normal and to just get over it, pretty much.

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    • If you're experiencing auras with headaches, that's almost certainly migraine. I'd be changing doctors if I were you because there are treatments for migraine which are very effective for most people.

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      • I have a different doctor, and I take proper meds now

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  • The only time I was (in a way) misdiagnosed was in my mid 40's, when I told a female doctor in answer to her questions that my periods were becoming shorter and further apart. She immediately said "Oh you must be going into menopause, I'll prescribe hormone therapy for you." My response was: "Why? I'm quite happy my periods are less frequent and shorter!"

    This wasn't a misdiagnosis, but an example of pure idiocy: shortly after my first grandchild was delivered by emergency cesarian section, a woman doctor told my daughter shortly after she came out of the operating theatre to take care of her partner, because he'd had a difficult day! I still can't work out what was in her head to say such a stupid thing.

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  • Webmd always misdiagnosed me with cancers. Other than that, real doctors had done some great jobs on diagnosing me and had been real lifesavers so far.

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  • I just keep getting the usual which is, it can be more than one issue and that they'll look into it

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  • Mine was more psychological, but I was misdiagnosed with Asperger's Syndrome, depression, and anxiety in my early teens. I was subsequently prescribed antidepressants and anti-anxiety medications that nearly drove me to suicide, and essentially told I was too stupid to recognize my own feelings. After a particularly bad breakdown, I got re-tested and it turned out I had none of those things and was going through awkward growing pains associated with puberty. I weaned myself off of the medications and have never looked back. I feel 1000% better now. No more feeling like I'm in a constant dream state, too exhausted to do anything and feeling like a zombie, constantly thinking about death, being extremely irritable and having mood swings, etc.

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    • I got put on Lexapro as an extra stimulant for an after school pick me up. That shit messed me up. Attempted suicide, but didnt get hurt. Threw the meds straight back at my therapist and found a new one.

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      • Yes i had a bad reaction to meds and shot myself. Didnt do anything though. I was hallucinating.

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      • I'm sorry you went through that, but glad you are okay now!

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        • Thanks :) puberty was the worst experience for me. Hope all is well for you.

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          • It was for me as well, but now I'm doing 100% better! Thank you! :)

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            • Alive and kickin it is better than dead and rollin in it

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  • Yes I have. I've had shoulders pain (and other joint problems) for about 20 years and nobody as yet found what it is.
    I'm also HLA B-27 and it is linked or not at all depending on the different doctors.
    This is annoying.

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  • Yea my doc said I'm crazy and belong in a mental institution.


    Jk I dont got a doc

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  • I don’t think I’ve ever been straight diagnosed inaccurately, but I have some “unsolved” or “undiagnosed” issues that my doctors just couldn’t figure out or put a name to

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    • I have also been down the “unsolved” road. My favorite verbal doctor solution is still “just stop doing/eating X”

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      • Hahaha I have a lot of issues with sleep, I don’t sleep at all during the night, and I’ve always heard “Have you tried pretending to be asleep” too many times

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        • Melatonin, L-theanine and ashwagandha are my sleep stack. I take a lot of caffeine and I had sleep issues even before that.

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        • Magnesium? Theanine?

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        • Drink alcohol.

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          • That's very bad advice for insomnia. OK, grog will get you to sleep but the quality of the sleep isn't much good for you and relying on alcohol to sleep is very unhealthy.

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            • Sometimes life dictates you choose between the shit choice, or the worse one.

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            • Yes I know. I was kidding.

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            • Well Ellenna, I was half kidding. As a bipolar I could often be awake for a week, literally. It's better to drink and get lousy sleep than none at all. After about the 5th day of no sleep (sure microsleep occurs but its seconds or minutes) one gets extremely paranoid and cant differentiate reality from dreams when they try to sleep.

              It's really disturbing and I have been through it many times.

              So yeah, a slab of grog is preferable and get a few hours of shitty, passed out, non rem, sleep.

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          • I tried that for months lmfao, I just ended up going into work drunk off my ass in the mornings

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  • Yes and more than once. I tend to distrust doctors.
    To be honest i did have rare conditions both times but the misdiagnosis almost killed my son.
    Had a rare placenta condition velamentous insertion in pregnancy that almost killed my baby. A simple late ultrasound could have shown it. If id have had contractions the baby would have bled out. I should have had an early C section.
    I also had a rare ear condition called PET. First doctor prescribed the wrong meds which didnt help. Diagnosed myself, second doctor was amused and told me to gain 10 lbs( it did fix it).
    Also i was never diagnosed with PTL syndrome but i definitely have it. Thats what happens sometimes when a woman has a tubal ligation. It causes early menopause.Ill probably be on hormones forever.

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    • Doctors tried to talk me into a tubal ligation after my second c section. There argument was.. .since we already have you cut open. I said no. And good thing, because that was traumatic. Didn't need to make it longer. After, I was pressured to get on birth control. Very annoying. Child birth in America is so bad. But in their defense, they usually suggest way too many ultrasounds to begin with. It seems like when they should have, they didn't. And now they will reccomended more! I do hate western medical practices. I am sorry to hear you have to manage that. Wonky hormones are the worst.

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      • Yes ive read America has the highest mother mortality rate in a first world country.
        Im fine as long as i take estrogen but at some point ill have to stop and go nuts again lok.

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    • Yikes!

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      • I had the tubes tied because they said a second pregnancy would be dangerous.

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        • My brother’s late wife was told to have her tubes tied because childbirth would cause her to go into diabetic shock and die. She had two kids and did not die from child birth. (She had brittle diabetes)

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